RTS Sharing and Caring Conferences

2023 Portland, Maine

2018 Salt Lake City, Utah

2016 Seattle, Washington

2015 Lake Orion, Michigan

2013 London, UK

2012 Chantilly, Virginia

2010 Houston, Texas

2007 Houston, Texas


2020 Webinar Series

1 August - Dr. Lisa Wang, RTS History and Status of Research (click to see the slides)

19 September - Dr. Emil Zakutny, Resiliency During the Pandemic (click to see the slides)

10 October -Dr. Levy, Management of Dermatologic Issues in Rothmund-Thomson Syndrome (click to see the slides)

21 November - Dr. Wang discusses the characteristics and differences of Type 1 and Type 2 RTS (click to see the slides)

19 December - Dr. Wang discusses Cancers prevalent to RTS and treatment strategies. (click to see the slides)


Coping with Chronic Illness in the Family

Click here to read a article from Emil Zakutny, D.S.W., LCSW, LMFT, about coping with chromic illness in the family.

Why Support Rothmund-Thomson Syndrome Foundation


Courage. Kindness. Friendship. Character. These are the qualities that define us as human beings, and propel us, on occasion, to greatness. Meet some of the patients and you will find out how they are making life that much better. Click on their photos to learn more.


Meet Lucy Hanson, four years old from Westbrook, Maine. Lucy’s journey towards an RTS diagnosis started.....

Brianna & Zoey

We have two beautiful daughters Brianna now 7 years old & Zoey 2 years old. They were both born with Rothmund-Thomson Syndrome.....


My daughter, Shauna, is 2 years old. She was born at 6 lbs 13 ozs. At birth she failed her hearing screening and at 1 month old we learned that she had hearing loss in both ears. Shauna has worn a hearing aid since 3 months of age....


This is John Michael Moore. He is now 26. When he was born he had problems right from the start. He was admitted to our local hospital at two weeks old....


The Rothmund-Thomson Syndrome Place, better known as the RTS Place, can trace it's origin back to May 2002, when a then 19 year old Victoria Kimmel reached out to Dr. Lisa Wang at the Texas Children's Cancer Center, with the following email...


When she's born, a genetic doctor told us she has Baller Gerold Syndrome. She had a craniosynostosis and no thumbs. At 6 months she began a skin problem. During the first year we searched to find what out was going on with her and finally a dermatologist told us it was a genetic problem....


Our story began in London England , May 1999, when after a period of infertility suddenly Binu my darling wife became pregnant again with our second child after some six or so years of trying. We were over the moon...
Read Their Stories and More