The Rothmund-Thompson Syndrome Place, better known as the RTS Place, can trace it's origin back to May 2002, when a then 19 year old Victoria Kimmel reached out to Dr. Lisa Wang at the Texas Children's Cancer Center, with the following email.


"Hello, My name is Victoria. I got your e-mail address from Sean. I don't know if that means anything to you of not but anyway. I have RTS and...well I heard your doing research on it or something. So I thought I should write you. I don't know...umm. I don't know what to say. I'm 19 years old. I'll just talk to u later. bye



During the remaining 6 short years of her life, Victoria dedicated her energies towards RTS awareness and research, reaching out and supporting families of RTS, raising money for continued education and research, and sharing her enthusiasm and love with her extended RTS family.


With this same spirit, our goal is to establish a RTS non-profit organization to raise funds for extended research, promoting RTS awareness, and for improving the lives of all families living with RTS.


Mailing Address

Rothmund-Thomson Syndrome Foundation

4307 Woodward Court

Chantilly, VA 20151

Email us at