Meet Our RTS Team

 

The Following are affiliated with the Texas Children's Hospital and Baylor College of Medicine:

 

Lisa L. Wang, MD

Assistant Professor, Department of Pediatrics, Section of Hematology/Oncology

 

Moise L. Levy, MD

Chief, Pediatric Dermatology Service, 'Specially for Children/Dell Children's Medical Center

 

Richard A. Lewis, MD

Professor, Departments of Ophthalmology, Medicine, Pediatrics, Molecular and Human Genetics

 

Sharon E. Plon, MD, PhD, FACMG

Chief of Baylor Cancer Genetics Clinic and Neurofibromatosis Clinic, Professor of Pediatrics and Molecular and Human Genetics

 

Ta-Tara Rideau

Research Coordinator for RTS Studies

 

Helpful Foundations and Associations:

 

Gene Reviews

Home page: http://www.genetests.org

 

Human Growth Foundation

997 Glen Cove Avenue

Glen Head NY 11545

Phone #: 516-671-4041

800 #: 800-451-6434

e-mail: hgf1@hgfound.org

Home page: http://www.hgfound.org/

 

Little People of America, Inc

250 El Camino Real

Tustin CA 92780

Phone #: 714-368-3689

800 #: 888-572-2001

e-mail: info@lpaonline.org

Home page: http://www.lpaonline.org

 

MAGIC Foundation for Children's Growth

6645 W. North Avenue

Oak Park IL 60302

Phone #: 708-383-0808

800 #: 800-362-4423

e-mail: mary@magicfoundation.org

Home page: http://www.magicfoundation.org

 

NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse

1 AMS Circle

Bethesda MD 20892-3675

Phone #: 301-495-4484

800 #: 877-226-4267

e-mail: NIAMSinfo@mail.nih.gov

Home page: http://www.niams.nih.gov/Health_Info

 

NIH/National Eye Institute

Building 31 Rm 6A32

Bethesda MD 20892-2510

Phone #: 301-496-5248

e-mail: 2020@nei.nih.gov

Home page: http://www.nei.nih.gov/

 

NIH/National Institute of Dental and Craniofacial Research

Phone #: 301-496-4261

e-mail: nidcr@nih.gov

Home page: http://www.nidcr.nih.gov/

 

National Foundation for Ectodermal Dysplasias

410 East Main Street

Mascoutah IL 62258-0114

Phone #: 618-566-2020

e-mail: maryk@nfed.org

Home page: http://www.nfed.org

 

Mailing Address

Rothmund-Thomson Syndrome Foundation

4307 Woodward Court

Chantilly, VA 20151

Email us at

rtssupport@rtsplace.org