Helpful Foundations and Associations


A generous donation was made to the Rothmund-Thomson Syndrome Foundation from SunGuard. Those who are not familiar with this product SunGuard is an easy-to-use laundry aid that washes UV protection right into clothes. Add one package of SunGuard to a load of laundry, and you wash a skin-saving Ultraviolet Protection Factor of UPF 30 into every garment and protect against damaging rays for up to 20 washings.

If anyone is interested in trying this product, please send an email to along with your current address and we will mail you out a couple of free samples. To get more information on SunGard, please visit their website: Click here: What It Is - SunGuard Wash-In Sun Protection


 Thank you to Mr. Jon Horovitz of UVSunSense for his generous donation of wristbands that monitor UV exposure. The RTSF has mailed one to each family. Please contact the Foundation if you have not received your sample. For more information on the UV SunSense wristbands visit their website,


Texas Children's Cancer Center RTS Site


Home page:


Gene Reviews


Home page:


Clinical Testing Information


Home page:


Human Growth Foundation


997 Glen Cove Avenue

Glen Head NY 11545

Phone #: 516-671-4041

800 #: 800-451-6434


Home page:


Little People of America, Inc


250 El Camino Real

Tustin CA 92780

Phone #: 714-368-3689

800 #: 888-572-2001


Home page:


MAGIC Foundation for Children's Growth


6645 W. North Avenue

Oak Park IL 60302

Phone #: 708-383-0808

800 #: 800-362-4423


Home page:


NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse


1 AMS Circle

Bethesda MD 20892-3675

Phone #: 301-495-4484

800 #: 877-226-4267


Home page:


NIH/National Eye Institute


Building 31 Rm 6A32

Bethesda MD 20892-2510

Phone #: 301-496-5248


Home page:


NIH/National Institute of Dental and Craniofacial Research


Phone #: 301-496-4261


Home page:


National Foundation for Ectodermal Dysplasias


410 East Main Street

Mascoutah IL 62258-0114

Phone #: 618-566-2020


Home page:


Mailing Address

Rothmund-Thomson Syndrome Foundation

4307 Woodward Court

Chantilly, VA 20151

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