Helpful Foundations and Associations

 

A generous donation was made to the Rothmund-Thomson Syndrome Foundation from SunGuard. Those who are not familiar with this product SunGuard is an easy-to-use laundry aid that washes UV protection right into clothes. Add one package of SunGuard to a load of laundry, and you wash a skin-saving Ultraviolet Protection Factor of UPF 30 into every garment and protect against damaging rays for up to 20 washings.

If anyone is interested in trying this product, please send an email to rtssupport@rtsplace.org along with your current address and we will mail you out a couple of free samples. To get more information on SunGard, please visit their website: Click here: What It Is - SunGuard Wash-In Sun Protection

 

 Thank you to Mr. Jon Horovitz of UVSunSense for his generous donation of wristbands that monitor UV exposure. The RTSF has mailed one to each family. Please contact the Foundation if you have not received your sample. For more information on the UV SunSense wristbands visit their website, http://www.uvsunsense.com/uvss/

 

Texas Children's Cancer Center RTS Site

 

Home page: http://www.txccc.org/content.cfm?content_id=717

 

Gene Reviews

 

Home page: http://www.genetests.org

 

Clinical Testing Information

 

Home page: http://www.bcm.edu/geneticlabs

 

Human Growth Foundation

 

997 Glen Cove Avenue

Glen Head NY 11545

Phone #: 516-671-4041

800 #: 800-451-6434

e-mail: hgf1@hgfound.org

Home page: http://www.hgfound.org/

 

Little People of America, Inc

 

250 El Camino Real

Tustin CA 92780

Phone #: 714-368-3689

800 #: 888-572-2001

e-mail: info@lpaonline.org

Home page: http://www.lpaonline.org

 

MAGIC Foundation for Children's Growth

 

6645 W. North Avenue

Oak Park IL 60302

Phone #: 708-383-0808

800 #: 800-362-4423

e-mail: mary@magicfoundation.org

Home page: http://www.magicfoundation.org

 

NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse

 

1 AMS Circle

Bethesda MD 20892-3675

Phone #: 301-495-4484

800 #: 877-226-4267

e-mail: NIAMSinfo@mail.nih.gov

Home page: http://www.niams.nih.gov/Health_Info

 

NIH/National Eye Institute

 

Building 31 Rm 6A32

Bethesda MD 20892-2510

Phone #: 301-496-5248

e-mail: 2020@nei.nih.gov

Home page: http://www.nei.nih.gov/

 

NIH/National Institute of Dental and Craniofacial Research

 

Phone #: 301-496-4261

e-mail: nidcr@nih.gov

Home page: http://www.nidcr.nih.gov/

 

National Foundation for Ectodermal Dysplasias

 

410 East Main Street

Mascoutah IL 62258-0114

Phone #: 618-566-2020

e-mail: maryk@nfed.org

Home page: http://www.nfed.org

 

Mailing Address

Rothmund-Thomson Syndrome Foundation

4307 Woodward Court

Chantilly, VA 20151

Email us at

rtssupport@rtsplace.org